What role/impact does gametalk have/play in your everyday life?
Posted: Posted March 30th, 2017 by weid man
Gametalk has played a huge role in my everyday life. Ever since I first joined the community (June 16, 2003 when googling information about Mario party 5), I have met tons of wonderful people here, and I can say for sure that this is the most friendly video game community out there (and website in general) compared to other ones that I've also been a part of, such as gamefaqs/spot, ign, and gameapy and the smash bros communities (smashboards, all is brawl, smashmods). The people here are so wonderful, and we all seem to help each other for whatever problems we are facing in our lives, so we're both helping each other in and outside the x-box. I would not be where I am today if I had not joined this community. I would be lonely, bored, and probably suicidal since I can't do anything with my body at all now except texting, and I'm trying to figure out a way to fix my index fingers so I can play smash and Mario kart and all video games and pc games with you all. Basically all of my real life friends are working full time 24/7 and most don't even live in San Diego anymore because they can't find jobs here because our city's economy is so broke, house prices are outrageously expensive and unaffordable to buy and live in for many. So literally all I can do now everyday is browse my phone (it is difficult to type on a computer because both of my index fingers were operated on and have new muscles and nerves regranted in them which don't work 100% well enough, meaning I make a lot of mistakes when touching things with them because they slip and slide and hit the wrong areas that I'm trying to touch them with).
All the things we share and to together is so nifty. All of the friends who we make and help each other with our needs is beyond beautiful. It's like a life saver and such, and keeps us entertained in times of misery. I have had the pleasant opportunity to meet six members from this community in person, and hopefully will get to meet more as time goes on.
For those who do not know me and why I have all of these inter phyaiologoca problems with my body, I was born with an extremely terminal disease (possibly worse than cancer), which affects 1/40,000 people, called Neurofibromatosis type 2 (nf2) for short, which consists of benign tumors that grow all over the central nervous system, causing damage and disfuncrion of the parts involved, and it becomes more aggressive over time until it kills the patient. There is no known cure for this diseases, although there is one chemo drug which may become a cure for it in the future, called avastin, because it has shrunk the tumors in the body for a select number of people, inlcluding me (the term for this is called necrosis), and it is progressively becoong more effective and working for many now. Average lifespan for people who have this disease is 36 years. I've talkes to many of the people who had this disease in the recent past who are now dead (one who happened to be a hardcore Zelda fan and gamer in general, he had the triforce symbol set as his Facebook profile and he was only 17 years old and only weighed 71 pounds when he passed away. I can see him playing breath of the wild in heaven right now. Then there was another gamer who had this disease and set master chief as his Facebook profile photo and he was only 26 years old| and the other gamer who died happened to have nf1 and he was a true PS3 lover and he had to sell his Wii and brawl for it back when it first started making quality games after that lousy first two year start). And that's only a very small portion of the people who I have talked to who are now dead because the tumors grew all over their brain and spine and killed them.
Nearly everyone (including me) who has this disease is totally deaf because the first sign symptoms for this disease are bilateral acoustic neuromas, and unlike nearly every other deaf person out there, cochlear implants will not work for us because the damage is done on the nerve, not the cochlea, and since the nerve is what is responsible for processing speech recognition, the implant that we ARE eligible for, called the auditory brain stem implant (ABI), can only help with awareness of sound and can't interpret speech at all, unlike the cochlear implant which can. So we basically are deaf-deaf with this disease.
That's only the tip of the iceberg for those who have nf2. What's much worse is that tumors grow all over the brain and spine, causing headaches, seizures, breathing, swallowing and walking problems, moving fingers/arms around, etc. This is when the condition becomes lethal. Everyone has to have surgery in order to remove these tumors to prevent any problems that would ensue if left alone because the tumors would damage the nerves and break the body apart, and they often regrow even after being removed. Since healthcare costs are outrageously high today, many insurance companies are DICKS because they don't want to help pay for all of our needed surgeries, and many have died because they couldn't go see the best doctors who know a lot about this disease and how to remove tumors safely surgically, because their insurance companies won't let them unless they pay really high premiums. So these people who can't afford to get insurance have to go with shitty Medicaid, and the doctors aren't experienced with this disease, so they cannot help them,and many die because of lack of healthcare.
So this is the backbone of this fatal disease that I happen to have. Where I'm at with this right now is that I am totally deaf, mute, can only swallow liquids, legally blind in both eyes, impaired index fingers, and have major breathing problems and drool a lot. I have to be fed through a feeding tube, and I wear a breathing tube that I have inserted into a hole that was inscribed in my throat surgically by my ENT, to separate my airway from my esophagus so that I will never aspirate again and that I can drink again. I drool everyday still because my tongue/throat muscles are almost paralyzed, and my saliva comes up and out of my mouth. There's no way that any of these problems that I have can be restored, so I'm stuck with this until I die. For the past four and a half years now I have mostly been just laying in bed texting/browsing the internet/Facebok timeline and chat and gametalk on my iPhone, and watching some sport games on tv. I live with my parents all alone now since my sister is now married and lives with her husband somewhere within San Diego where I live. My hand doctor thinks that my two index fingers are fine (which they aren't), so until I get both of these fixed I won't be able to pick up and hold a video game controller and press the l and r buttons. So what I get out of gametalk entertains me greatly and becomes my main hobby, and all of the friends that I make on the internet and real life basically become my family and life. So I value you all very highly and become very fond of everyone here.
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